A Day Of Joy For Karagh :)

Its been over a week now since Karagh had her scan done. .we couldn't have been any happier with the result we got that it was all ok.Shes doing good and getting so big now.She has her good days and bad days but mostly all good :)
There's alot of days of joy for Karagh bringing her place's and seeing different things but today was one of the best days :) Karagh received one of the Joy Jars from Jessie Rees Foundation : Never Ever Give Up today  :)

Her Smile just says it all she was delighted with her Joy Jar thanks to Jessie Rees Foundation :                                                                    NEVER EVER GIVE UP :)  

Karagh playing with the toys that were stuffed inside the Joy Jar :)

N E G U :)

All Clear :)

So Yesterday was Karagh's first Scan in 3 Month's since she was N.E.D and they were all clear :) We were so delighted and so to was Karagh's doctor.He was delighted with her progress.Her next scan is a CT scan which is on the 4th of September which will also be Karagh's first birthday aswell :)

Yesterday we were back down in St Johns ward for the first time in 3 month,s.It was good to see all the nurses that had been working with Karagh again and they were all happy to see Karagh to.As small as she was 3 months ago she still remembered them and as usual gave them a smile :) They couldn't beleave how big she got.It was good to talk to them all again and for them to see Karagh.

        After a long Morning in the Hospital she eventually gave up and fell asleep on way home :)




Will have more post up soon :)

Nerve's Time

Karagh's scan is coming up on Tuesday and im definitely not looking forward to it.My nerves are kicking in big time now.Its been 3 months since we were last up with Karagh's Doctor Micheal.I don't want Tuesday to come but at the same time i just want to get it done and over with,Within the 3 Months there's a few things that worried us like Karagh been badly constipated again  the reason we brought her to the hospital in the first place and just the other day we noticed her constantly hitting herself on the head with her hand,she only done it the once so maybe it was just a one off thing she had a headache or her teeth is driving her mad :(

I cant help but worry bout these things or things i think are strange its all ive been doing since the first day we   found out.


So please Keep the prayers going for Karagh that it will be the news we all want.

Apart from the few things i mentioned above Karagh has been in good form she is flying it and as always she is smiling and now giggling everyday,she is getting so big and always wants to be down on the ground she is not yet crawling but the way things are looking she will be walking before she is crawling :)She is my Little Inspiration and My Little Fighter and i love her to bits x




                                     
                         Smiling for the Camera as soon as she see's a camera she smiles

                           6 attempts to get her passport photo because she kept smiling at the Camera :)

Always Thinking

 So much to say because its been a while since i have updated my blog.We have done so much stuff since the Zoo we have been to loads of party,s,  Karagh has had loads of sleep over with both Nanny,s and Granda,s.


But there one thing i am so happy about and that's Karagh seeing her uncle Dean for the 2nd time play a rugby match but this time it was a final for the Darcy Cup and he won.We had a brilliant Day and even better when we went down pitch side to get photos taken with the cup, but as the match goes on for 70 minutes it was to much for Karagh and she fell asleep in her buggy ha :)

A picture of Karagh's uncle Dean scoring the winning try :)

New Room:

 We got Karagh's room ready for her to move into and she loves it,she in her own room 3 weeks now she starting to sleep all night. Its been hard as she is only getting back into her routine of things with everything she has been through.I do nights and Sarah gets up in morning even if she sleeps or not im still in and out to check on her id stay awake all night if i have to.For the first 3 weeks of her been in her own room  she would wake up 5 or 6 times during the night,i didn't mind i would just go into her and give her her soother and stay in there with her till she would fall back asleep.There has been nights where she cry'd so much with her teeth as she is teething like mad i would pick her up and let her fall asleep in my arms and then put her back down in her cot.Now she goes to sleep between 8 and half 8 and sleeps through till half 7 maybe just wakening ounce for her soother but other than that she is really good :)

                                                 Karagh in her new room :)

                                                Fast asleep and looks so comfy :)

The Beach:


As i was explaining earlier we have done so many things in the last few weeks and another one of them was a trip to the beach with Karagh for the first time :) we had a brilliant day relaxing on the beach, playing abit of football and taking a walk up along the pier.We brought her into the arcades to play on some of the games in there and as i always do i got her 1 or 2 teddy's :)

                                                      Enjoying the Sun and beach :)

                                                               Karagh and Mammy :)

Presents:

Karagh enjoying her new teething rings that were sent to her by some friends Mike and Kezia she really likes them :) Mike and Kezia have been so good to us :)

                                                     A big Kiss for Daddy xx



Always Thinking:


Its been 2 and a half months now since Karagh has been N.E.D(no evidence of disease) she has been in great form and is doing so well,she is sitting up on her own she always wants to be down on the ground trying to walk even though she cant even crawling yet but i give it another few days and she will crawl she doing her best too,the other day she started clapping her hands and dancing,i have her giving me a high five every time i hold my hand up :) and every morning Sarah brings her down she is Da Da Da Da until i get up :) she is just the best xx. .she has had her Hickman line(Freddie) removed now the last 3 weeks and it was a bit of mixed emotions getting it out. .I was delighted she was getting it out as it was another step on the right road but there was that little bit of me inside that wanted her to keep it, i don't no why? i think it was just incase of it coming back and the line was out that she would have to go through it all over again getting it back in,sounds stupid maybe but there always going to be that part of me that's never relaxed always thinking when she cry's is it back again.She has a scan in June and im not looking forward to it as expected, i wont be looking forward to any of the scans really, but i didn't call her MY LITTLE FIGHTER for noting and she proved to us all that she is a fighter and she is going to power her way through every scan.She is the best and i am so so proud of her and so proud to be a father :) love her to bits

                                          Just back from having Freddie removed

                                      My Little Princess all grown up and full of smiles as usual :)






Want everybody to keep Karagh in your prayers and that every scan she has is good news :) xx

A Trip To The Zoo

Yesterday was a beautiful Day so we decided to bring Karagh to the Zoo. .She was in hospital first to have her  Freddy cleaned and her bandage changed. .After she was done we left for the Zoo Me Sarah, Karagh and her uncle Shane. .We had a brilliant day there Karagh got to see lots of animals and was amazed by the giraffes which came up real close to us. .The picture above we had taken when we got there. .We spent most of the day in the Zoo and we got loads of pictures of the animals and loads of pictures of Karagh awake and asleep :)


She had fallen asleep when we were nearly finished in the Zoo so she got to see all the animals except the lions as they were building an Asian Plains for the lions. .Cant wait till its finished so we can go back up and see them :) One thing we did get to see was TIGERS :) the one we got to see was the Amur Tiger as the Sumatran Tiger was asleep and we couldn't really see him as much.

                                                                 Amur Tiger

                                                         Karagh and the Giraffes

                                                     Karagh sitting in the wishing chair

                                                           A hard day at the Zoo




After a day in the Zoo yesterday we had our meeting today with Dr Micheal Capra who is Karagh's consultant. .We had a talk about when she was diagnosed and her scans which showed her being N.E.D(no evidence of disease)We had our questions we had to ask him and we both were happy with what he told us. .Karagh will have her date sent out to have her Freddie removed. .We still have a long road ahead of us with hospital visit scans and other test done but at least we are on the right road :)Her next scan is on the 5th June   and every 3 to 4 months after that. .she will have her usual test done urine,ct's and ultrasounds to make sure it doesn't come back and we pray each and every day that it doesn't.

                                                                     Full of Smiles

First Paddy's Day Together

St Patrick's day was good it was our first paddy's day together not only was it our first paddy's day as a family but it was Karagh and her friend Jack's very first parade. .It wasn't the warmest of days but we all had a good time :) The day started off raining but then it stopped. .both Karagh and Jack were well wrapped up and all cosy looking in there buggy's so much that we wanted to climb in with them :).There was plenty of things for them to both watch mostly interested in the horses and dogs.My Mam and Dad and my brother Dean had come into watch the parade to and we all met up together. .When the parade had finished we decided to go back to our house and get something to eat and watch the rugby match on television"well abit of it anyways then Mickey Mouse was put on for Karagh and Jack" they were happy for the evening.

Our First Paddy's Day Together

Mothers Day

The day after was mothers day and was Sarah's first Mothers day. .For mothers day Karagh got her mammy a dvd she likes and a lovely card along with a voucher for a tattoo that i had drew for Sarah to get done. .She will have pictures up soon so i wont tell what it is she got done but i will say that it is lovely and im sure you will like it to  :)

Sarah will look at her tattoo and will always remember her first mothers day :)

Next week the 27th we are meeting with Karagh's consultant Dr Micheal Capra to have a look for ourselves at her CT scans to see the before and afters of Karagh's tumor just to close our minds on it.we are goin to also talk about a date to have Karagh's Hickman line removed and to see what her protocol is from here on.Until then we still visit the hospital weekly to have it cleaned and bandage changed.

                                             Karagh and Jack getting ready for Parade

                                                     Happy St Patricks Day

                                             Me Sarah and Karagh on Paddy's Day

Best feeling ever

In the hospital again today to have Karagh's freddie cleaned and bandage change. .As always from day one Karagh has always been good with getting her bandage done and freddie cleaned she just lies there and looks at the nurses doing everything around her,if she could id say she would help them and if she could she would tell them to do it right ha. .through all of it the nurses cant beleave how good she is with getting everything done and how well she has coped with everything over the last few months she has been a little trooper and i love her to bits :)

Over the last 3 months of her been in and out of hospital i can only ever remember her crying once in the hospital and that was due to been over tired and been woken up to have her lines flushed after chemo and i remember that day because one of the nurses and the receptionist look at us and said that a first,i never heard her cry before :)That was her first time ever.

Since being N.E.D Karagh is doing really good,she is feeding well and she is putting on weight. .she loves her bottles and most of all she loves her breakfast,dinner,yogurt and tea aswell. .she is sleeping good and she loves watching her tele during the day. .she loves to watch Mickey mouse clubhouse,Handy Many,Jungle junction,Special Agent Oso,Jake and the never land pirates and Curious George. .watching her watch tele i would do all day just to watch the expressions on her face when each program comes on she loves each and every one of them :)


We have her out alot more now in the fresh air and bring her places we couldn't before. .Today we went to the Park with her best friend Jack and they had a great time together on the swings. .To be able to bring her out like that is great because i love spending every minute of the day with Karagh doing fun things together and seeing her smile makes me smile. .i never had the opportunity before of being able to do that to bring her out or down to the park and today was absolutely brilliant and the next day out for us all it cant come quick enough. .hopefully or next big day out now is to the zoo :)

                                                    Karagh's first time on the swing

                                   Karagh and her best friend Jack on the swings together

We couldn't watch Karagh and Jack have all the fun so me and Vinny had a go on the swings ourselves and had a bit of fun :)