First Paddy's Day Together

St Patrick's day was good it was our first paddy's day together not only was it our first paddy's day as a family but it was Karagh and her friend Jack's very first parade. .It wasn't the warmest of days but we all had a good time :) The day started off raining but then it stopped. .both Karagh and Jack were well wrapped up and all cosy looking in there buggy's so much that we wanted to climb in with them :).There was plenty of things for them to both watch mostly interested in the horses and dogs.My Mam and Dad and my brother Dean had come into watch the parade to and we all met up together. .When the parade had finished we decided to go back to our house and get something to eat and watch the rugby match on television"well abit of it anyways then Mickey Mouse was put on for Karagh and Jack" they were happy for the evening.

Our First Paddy's Day Together

Mothers Day

The day after was mothers day and was Sarah's first Mothers day. .For mothers day Karagh got her mammy a dvd she likes and a lovely card along with a voucher for a tattoo that i had drew for Sarah to get done. .She will have pictures up soon so i wont tell what it is she got done but i will say that it is lovely and im sure you will like it to  :)

Sarah will look at her tattoo and will always remember her first mothers day :)

Next week the 27th we are meeting with Karagh's consultant Dr Micheal Capra to have a look for ourselves at her CT scans to see the before and afters of Karagh's tumor just to close our minds on it.we are goin to also talk about a date to have Karagh's Hickman line removed and to see what her protocol is from here on.Until then we still visit the hospital weekly to have it cleaned and bandage changed.

                                             Karagh and Jack getting ready for Parade

                                                     Happy St Patricks Day

                                             Me Sarah and Karagh on Paddy's Day

Best feeling ever

In the hospital again today to have Karagh's freddie cleaned and bandage change. .As always from day one Karagh has always been good with getting her bandage done and freddie cleaned she just lies there and looks at the nurses doing everything around her,if she could id say she would help them and if she could she would tell them to do it right ha. .through all of it the nurses cant beleave how good she is with getting everything done and how well she has coped with everything over the last few months she has been a little trooper and i love her to bits :)

Over the last 3 months of her been in and out of hospital i can only ever remember her crying once in the hospital and that was due to been over tired and been woken up to have her lines flushed after chemo and i remember that day because one of the nurses and the receptionist look at us and said that a first,i never heard her cry before :)That was her first time ever.

Since being N.E.D Karagh is doing really good,she is feeding well and she is putting on weight. .she loves her bottles and most of all she loves her breakfast,dinner,yogurt and tea aswell. .she is sleeping good and she loves watching her tele during the day. .she loves to watch Mickey mouse clubhouse,Handy Many,Jungle junction,Special Agent Oso,Jake and the never land pirates and Curious George. .watching her watch tele i would do all day just to watch the expressions on her face when each program comes on she loves each and every one of them :)


We have her out alot more now in the fresh air and bring her places we couldn't before. .Today we went to the Park with her best friend Jack and they had a great time together on the swings. .To be able to bring her out like that is great because i love spending every minute of the day with Karagh doing fun things together and seeing her smile makes me smile. .i never had the opportunity before of being able to do that to bring her out or down to the park and today was absolutely brilliant and the next day out for us all it cant come quick enough. .hopefully or next big day out now is to the zoo :)

                                                    Karagh's first time on the swing

                                   Karagh and her best friend Jack on the swings together

We couldn't watch Karagh and Jack have all the fun so me and Vinny had a go on the swings ourselves and had a bit of fun :)

Good Day Out :)

The last few days have been so good. .I cant describe how i am feeling right now since we found out Karagh was cancer free. .She still has the fight of staying in remission but to no that she is in remission is far from the news we were expecting Friday 2nd. .Since finding out we have been doing loads of things together as a family. .Yesterday we went out shopping for Karagh to get her new clothes, we had a great day all out together it was brilliant. .When we were finished shopping the fun wasn't over yet :) we went to my brothers house for a Birthday party,it was Karagh's big cousin Dylan's 8th Birthday and we all had a good time. .That was Karagh's first time to be around loads of kids at once and she loved it. .she was smiling ,talking(trying to talk) and she didn't no where to look :) She sat in her buggy and as always a smile from ear to ear :) we have another party again in a few days for Sasha,Dylan's little sister she will be 3 so it'll be another fun day for everybody including Karagh,she love been surrounded by other kids :)

                                     Karagh and little cousin Kayla enjoying party yesterday :)




Will update more soon :)

She,s Done It

                                                                  our family :)

                                                             The little Fighter



Sarah rang the Doctor today to see if she could get the results of Karagh,s CT she had last week. .They took Sarah,s number and they told her they would get Dr Capra to ring her back. .This week has been the most nerve wrecking week i have ever had in my life waiting for the results. .I never prayed as much as i have in the last week for good news. .After Sarah had got off the phone i said id go wash the car in our local shop 2 mins from my Mam,s house, i was gone a about 20 mins. .I was just finished washing the Car when my phone rang. .It was my Dad. .I answered the phone and he told me to come back home. .My first thought was the Dr Capra,s after ringing and my second thought was its bad news why would he ring me when he knew i was coming back anyways why not just wait on me. .When i got home i walked in the door and Sarah was crying me Mam was crying and i could see tears in my dad,s eyes i thought to myself do i really wanna hear this. .Sarah couldn't say anything i look at me mam and she couldn't say anything either. .so i looked at my dad and he told me that the Dr had told Sarah that Karagh,s cancer had gone and that she wouldn't need an operation or any more treatment. .He had also said that he and the other consultants  looked at the scans and couldn't be leave that it had just disappeared the only thing there was a scar on top of her kidney. .I couldn't get words out of my mouth i couldn't be leave what i have just heard. .i went to Karagh and gave her a big hug and a kiss and then went to Sarah and gave her a big hug. .i still couldn't get words out though i was just so shocked but happy. .I went outside and lifted the cross from under my top ive been wearing from the first day Karagh was diagnosed and kissed it and i raised my hands up to the clouds with happiness its only then that i realize that all my prayers all your prayers and every prayer had been answered for Karagh to get better to be strong and to get through this. .I knew she would get through this. .As im writing this i still am in shock over this but deep inside i am so so so so sooooooo happy. .The week of a nerve wrecking as been worthed and this date the 2nd of March i will never forget. .Today on words we can do what we have never done and could never do with Karagh and that is to bring her places with us and just do things as a family now without having to cover her going into shops she can sit up in her buggy and look around her now without having to look through a plastic cover :) First thing i want to do with her is to bring her to the zoo and bring her to the tiger pen and explain to her why i picked a tiger to go into this battle with her . . Doesn't have to be today,tomorrow,or next week it can be a month or two from now and its what im going to do :) she might not understand stand what im saying but when shes older  i will tell her again and like me i no she will only love tigers. The day Karagh was born i was the happiest person ever and today was that feeling all over again if not more. .Shes a little Fighter she MY LITTLE FIGHTER and i love her to bits.

Hospital Day

Today was Karagh,s weekly blood test,s today in the Hospital. .we were over there bright and early this morning to have to days test done and the results were all good,her bloods are fine and she is doing good. .Karagh,s neutrophils are higher than they ever have been since she was diagnosed,they have always been below 1.0 and today they are 2.26 so that's very good :).Today is the start of a good week and lets just hope that the rest of the week brings us more good news  

Karagh been Karagh as usual today being nosey every Nurse,Doctor or any body that came into the room she was almost upside down looking at them and following every step they took and thing they picked up :)

                                                Full of smiles with Daddy,s hat on :)

A Good Weekend

This weekend was a good one for us Karagh is back to herself again eating and drinking as normal now.I had my brothers Birthday party last night which was a good night. . Sarah,s ma took Karagh for the night. .For the past couple of weeks ive felt like i been carrying blocks on my shoulders i haven't been able to sleep id be up half the night just trying to bend my back to release some of the tension in both my back and shoulders,it would work for 2 seconds and i be just the same, for the first time in ages i felt a bit of weight off my shoulders and i didn't feel any tension and i had a good time. .My brother had a good night to and it was brilliant because we hadn't all been out together in ages.After the good night i couldn't wait to see my little princess today and when i walked in the door today i had a smile waiting for me as always :) Sarah,Karagh and Sarah,s ma went of  shopping today for new clothes for the princess,i stayed at home to watch me and Karagh,s favorite team Tottenham play on television today.When Sarah and them got home she had bought some balloons(purple and gold)for us to release for little RJ who lost his fight against Neuroblastoma. we have been following RJ story for a long time now. .we put a little message on the Balloons for him from Karagh and we had Karagh hold them and let them go,it took her a while to let them go but she eventually did :)we took pictures to show Karagh when she is older what she did for RJ. .Karagh is fast asleep now beside me she is tired after all her little adventures she had today.she is back in hospital tomorrow to have her bloods checked and hopefully there all good. .This week is a waiting game for us all,we are waiting on the results of Karagh,s CT scan she had last Thursday,we will be getting the results either Thursday or Friday and we are all praying and would like you all to pray for her that it will be good news.

                                                        Karagh,s message for RJ

                                                        Ready to go outside

                                                         Karagh Releasing the balloons




Will update more tomorrow with her blood results :)

Thinking Back

I remember when we were told Karagh had Neuroblastoma i didn't no what to think or what to do.I felt sick i was running back and forward to the  bathroom every 10 mins feeling like i wanted to be sick. Every time i tried to eat it was just impossible cos all i could think about was my little princess and why did this happen to her to  us i never thought in a million years that we would have to go through this, for Karagh to go through this.It was the next day when we were in the hospital our family's had come up to  us in Crumlin it was there first time to be with us since we had found out. .Again i was still not feeling great i didn't sleep at all the previous   night i was up all night thinking and asking myself the same question,s over and over again why me why us why Karagh,The only way i got myself to sleep that night was by crying myself to sleep i thought if i don't sleep now ill be no good to anybody tomorrow and i have to be strong for Sarah and for Karagh.Our family,s came up to us anyways and i said id go for a walk just to get out of the little room we were in and to let both our parents see Karagh before she went to theater to have her Biopsy and Hickman line done.i decided to walk to the shop in the Hospital to get myself a drink of something i didn't no what because i knew whatever it was i probably wouldn't be able to drink it anyways but i picked up a bottle of orange,i had 10 euro in my pocket and i turned to go pay for it at the counter and i noticed teddy,s in a basket, i picked up a White Tiger and i ask the woman how much they were and she said 10 euro,as i like White Tigers i thought to myself Tigers to me represent STRENGTH, POWER AND A FIGHTER so i put back my bottle of orange and bought the teddy for Karagh and i came back to the room and i put the Tiger beside her in the bed and whispered to myself this is for you Beautiful because you have the STRENGTH POWER AND YOUR A FIGHTER to get through this YOUR DADDY,S LITTLE FIGHTER and you will always be MY LITTLE FIGHTER.The teddy now sits above her cot since the day she came home from hospital. .and i always think if i had bought the orange it would have been a waste because i wouldn't have drank it but this Teddy she will always have forever :) 

                                     

                                  A picture of Karagh asleep with Tiger over her head

                                          A picture of Tiger i no Karagh would like :)